The national LATER research is unique in the world. So far, 2,400 survivors participated in the DCCSS-LATER 2 study and visited the LATER outpatient clinic for additional medical data and blood sample collection. More than 6,000 of them participated in the multidisciplinary national Dutch Childhood Cancer Survivor Study 1 (DCCSS-LATER 1), which included data about childhood cancer diagnosis and treatment, health, lifestyle, and psychosocial functioning from questionnaires, and data on health outcomes from linkage to health registries. In the Netherlands, we have identified more than 12,000 5-year survivors treated for childhood cancer between 19. Nationally our group collaborates with the LATER outpatient clinic, LATER central data office, and survivors. Our group is focusing on quantification of the role of cancer treatment and other important risk factors as they impact health and quality of life, the development, validation and implementation of prediction models and potential (eHealth) interventions. Even many years after treatment, childhood cancer survivors are at high risk of developing long-term health effects resulting from their previous cancer treatment.
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